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Schloss Leopoldskron
The Art of Resilience: Creativity, Courage and Renewal 
Toward a Shared Culture of Health: Enriching and Charting the Patient-Clinician Relationship
10 Mar - 16 Mar, 2017
 The Child in the City: Health, Parks and Play

Faculty:
Tom Delbanco (Co-Chair) - Koplow-Tullis Professor of General Medicine and Primary Care,Harvard Medical School and Beth Israel Deaconess Medical Center, Boston, MA, USA
Tobias Esch (Co-Chair) - Professor in the Humanities and Integrative Health Promotion, Coburg University of Applied Sciences and Institute of General Practice, University of Duisburg-Essen, Germany
David Asch - Executive Director of the Penn Medicine Center for Health Care Innovation
Kanav Kahol - Division Head, Affordable Health Technologies Division at Public Health Foundation of India
Harlan Krumholz - Professor of Medicine and Professor in the Institute for Social and Policy Studies, of Investigative Medicine and of Public Health, Yale University
Tessa Richards - Senior Editor/Patient partnership, the BMJ
Sara Riggare - Health Informatics Centre, Karolinska Institutet, Stockholm, working on Selfcare for Parkinson's Disease
Jan Walker - Research Faculty, Division of General Medicine and Primary Care, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School

Additional Session Support:
Oscar Tollast (Resource Specialist)  

Abstract:
In 1998, in a Salzburg Global session attended by 64 individuals from 29 countries, teams of health professionals, patient advocates, artists, storytellers, policy makers, representatives of the media, social scientists and other lay individuals created the country of PeoplePower, a nation whose health system was built "through the patients' eyes." Central to this future projection of the individual patient-clinician relationship was an Internet-based patient record that "resides nowhere but is available everywhere. Patients are offered complete access to their medical record and urged also to...write in it - elaborating, tracking and explicating problems, correcting mistakes, prioritizing needs, and a times suggesting both diagnoses and treatment plans." Health professionals, patients and lay people work to promote health and manage illness more successfully through both individual initiatives and public health measures. And today, self-care combined with team care and broad-based efforts at collaboration, within families and communities as well as between individuals and their clinicians, are gaining new currency and understanding. To support such central goals and processes, how should one chart an individual's course through health and illness? In the future, could a transformation of the traditional medical record become a central part of an individual's management of health and illness? Could collaborative records, shaped both by clinicians and patients, become an integral part of the patient-clinician relationship? Could transformed, fully transparent records become central to the evolution of a true culture of health? How can that then be built on by communities, helping to shape the health care they want as well as need? And how can we ensure that these communities are made up of activated patients and citizens, sharing a culture of health with their clinicians? Since that seminal Salzburg meeting in 1998, new approaches to medical records have spread rapidly. In the United States, millions of individuals now have access to records through secure electronic patient portals. In addition, spurred by the OpenNotes movement (www.opennotes.org), major health systems are now inviting patients to read and respond to notes written by their clinicians and other health providers. In many other parts of the world, similar practices are spreading - at times aided by evolving health information technologies, at others based primarily on hand-written communication. This both empowers individuals, enhances health equity and draws on the cultural resources of communities.

Session Faculty

Tessa Richards
 
Tom Delbanco

 


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